“Invisible”: a film about fibromyalgia is being produced

Amy Schaeffer
Nick Demos, producer and winning filmmaker Tony Award, has a mission – he wants to bring the diagnosis, treatment and consequences Fibromyalgia life for the world’s conscience. He is personally touched by fibromyalgia: his mother, a woman living with fibromyalgia, found lack of pain relief, social ramifications and few answers. He is on a mission to discover the experiences of other people living with fibromyalgia, including people not typically thought of as having a chronic pain syndrome, including a young athlete. He said it is important to take fibromyalgia ahead hoping to get answers.

“We asked all the people interviewed for this film:” What is Fibromyalgia? “The answer is never consistent, and for those who have not, there is a lack of urgency to find the answer.

According to Demos, their findings so far indicate that those with fibromyalgia are subject to a system of assistance to the broken health and demographic data such as access to education and socioeconomic factors come into play, according to the National Pain Report. In his film, he talks with people from different backgrounds, ethnicities and socioeconomic groups, but finds common themes for all participants, he says.

“The diseases that no one sees even more diseases that could potentially trigger or be triggered by all these other conditions that are really fatal. Fibromyalgia still have to have the limelight because it does not kill you in the technical sense. But those in the Fibromyalgia community will tell you how to deteriorate this syndrome can be if they do not receive empathy, education lifestyle, and community support all its fatal counterparts already got. It remains a controversial topic, although millions prove that the disease is real and rampant. ”

The film is scheduled to be released in 2017 and will enter into several festivals next year, says Demos. Until now, the film was completely based donation, usually in patients with fibromyalgia or groups which are arranged to bring fibromyalgia consciousness. The syndrome has been referred to as a “elusive disease” according to Bodily Pain Chronic. It is characterized by chronic pain, whole body, headaches, sleep disturbances and mood swings. The fatigue associated with Fibromyalgia can be debilitating as well, and leads to difficulty in distinguishing Fibromyalgia Chronic Fatigue Syndrome.

It is a disease that causes deformities or threat to life through physical means, although patients suffering from fibromyalgia and other painful chronic disease may be more likely to take their own lives. People living with fibromyalgia describe precipitation as severe: relationship difficulties, difficulty performing many jobs, financial instability and depressed mood. Although no one knows the exact cause of fibromyalgia, some researchers believe it is due to chemical levels in the brain and can be genetic, as it seems to run in families. Women are more likely to be affected although the syndrome may also affect men.

Although treatments are available, such as Lyrica and Cymbalta drugs, no drug seems to be the answer for everyone, and can take significant time and trial and error to find out what medications work for patients and dosages they need. Self-care is an important part of dealing with the symptoms of fibromyalgia, such as getting enough rest, eat nutritious foods and avoid circumstances that cause undue stress or emotional energy. This can be a challenge for many people due to obligations of life and symptoms around the disorder itself.

Many people who have the disease feel isolated and misunderstood because the syndrome is invisible to others and not well understood by anyone, including many doctors. You expect your film can educate people and bring awareness to this debilitating syndrome.

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